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Diagnosed with soft tissue sarcoma under year ago...?

(1 post)
  1. Panda
    Member

    Anyone with sarcoma should be treated only by a sarcoma specialist at a sarcoma center. Your brother needs to be referred immediately. You do not mention what type of sarcoma he has . . there are over 60 subtypes. MD Anderson is an excellent facility . He should have his local oncologist make a referral if possible, otherwise call them yourselves.

    It is impossible just from your question to understand what treatment your brother underwent or even if it was appropriate for his type of cancer. Sarcoma is rare and should always be treated by someone who has experience with the disease.

    There are online support groups where your brother can join and talk with other patients with the same disease . . find out where they were treated and locate the best way to proceed or not proceed depending on his situation.

    Good websites to check out . . online support for sarcoma:

    Sarcoma Alliance
    http://www.sarcomaalliance.org/main.shtml

    Liddy Shriver Initiative - Sarcoma help
    http://sarcomahelp.org/

    ACOR - Sarcoma Support Listserv
    http://listserv.acor.org/SCRIPTS/WA-ACOR.EXE?A0=SARCOMA

    The ACOR site is active and can offer ideas as well as support if you reach out. But, of course, much of this will depend on your brother and his wishes at this point.

    The Importance of Treatment at a Specialty Center for Sarcomas
    http://sarcomahelp.org/learning_center/articles/sarcoma_centers.html

    The importance of second opinions
    http://sarcomahelp.org/sarcoma_second_opinions.html

    Posted 1 year ago #

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